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Welcome to the Limb Loss Matters Survey!  

We are very excited to have you participate in this research survey funded by the Department of Defense.  The survey should take you approximately 25 minutes depending on your level of amputation(s).

What is the goal of this survey?

You were directed to this survey because of your experience with limb loss/amputation.  The goal of this survey is to document differences in experience with amputation between men and women.  It is believed that there are physical, psychological, and social differences between men and women with amputation, though there is currently very limited evidence to demonstrate any differences.  Your participation will help to build this evidence.

Any personal information that you disclose in this survey will be reported anonymously, in aggregate, and will not be linked to you in any way.  You will not be personally identified in any report produced as a result of this study.  Because the research study is funded by the Department of Defense, they will have access to the anonymous data.

What are the potential consequences of withdrawing or declining?

If you choose not to complete the mandatory items (i.e., whether or not you have an amputation, how long you have been living with your longest amputation, your age, where you receive care, and your gender), you will be directed out of the survey and thanked for your participation. 

You have the right to decline to participate at any time by not answering the rest of the questions at no penalty to you.  No one will be informed that you did not participate in the rest of the survey. 

What are the potential risks of participating in this survey?

The risks of participation in this survey are small. The procedures involved in the survey – answering survey questions – have no known risks. 

There is some risk of temporary distress while responding to sensitive sections of the survey, such as sections regarding anxiety, depression and social isolation.  You can skip any questions that you do not feel comfortable answering. You can choose to close your browser at any time if you do not wish to finish the survey.   

To minimize the risk of distress contact information for national counseling hotlines will be available at the bottom or top of each survey page of the sensitive sections. We encourage you to reach out for assistance as you see fit.  

What are the potential benefits associated with participation in this evaluation?

There are no direct benefits to you from your taking part in this research study.  Your participation will help us learn if important differences exist and can be leveraged in the future. 


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